Breaking Stigma: Supporting Kids with Down Syndrome in Sierra Leone

by World Hope International | Mar 18, 2025 | Global Health

Improving Support Systems in Sierra Leone

World Down Syndrome Day is celebrated annually on March 21, and the theme for 2025 is “Improve Our Support System.” This theme highlights the importance of advocating for better support networks as we raise awareness, promote inclusion, and celebrate the lives of individuals with Down syndrome.

Down syndrome is a genetic disorder caused by a full or partial extra copy of chromosome 21, leading to developmental and intellectual delays. It is also characterized by distinct facial features, limb differences, and hypotonia (low muscle tone).

Myths & Misconceptions in Sierra Leone

In Sierra Leone, many negative perceptions and myths surround children born with Down syndrome. They are often called “devils,” and some believe that their mothers had relationships with Asian men. These harmful misconceptions cause distress for families and contribute to stigma and exclusion.

Enable the Children’s Supporting Role

In line with this year’s theme, Enable the Children (ETC) provides holistic rehabilitation and advocacy services for children with Down syndrome and other disabilities.

Our services include:
✔ Physical therapy: Strengthening muscles and promoting early developmental milestones.
✔ Occupational therapy: Supporting daily activities such as potty training, speech development, self-care, and school readiness.
✔ Locally made equipment: Providing custom chairs, splints, commodes, and standing frames to support mobility and independence.
✔ Psychosocial counseling: Helping families navigate emotional challenges and societal stigma.
✔ Community and school sensitization: Raising awareness and ensuring schools are inclusive for children with disabilities.

Success Story: Adonis

Adonis was diagnosed with Down syndrome and developmental delay at 8 months old at Ola During Children’s Hospital. At the time, he was unable to sit independently, crawl, or control his muscles due to significant hypotonia (floppiness).

Following consistent therapy interventions, Adonis has shown remarkable progress. He can now walk independently, a milestone that reflects his tremendous improvement. Encouraged by his success, his family has taken the next step by enrolling him in school, ensuring he continues to thrive.

Each person with Down syndrome has unique strengths and talents. With the right support, inclusion, and encouragement, they can lead happy, fulfilling lives. On this World Down Syndrome Day, and every day, World Hope will be working to strengthen and grow our support networks to give those with Down Syndrome that little extra help they need to thrive.