Living With Down Syndrome: Bakisa’s Journey to Overcome

by Sorie Bangura | Mar 25, 2026 | Global Health

World Down Syndrome Day is observed each year on March 21 as a time to raise awareness, promote inclusion, and celebrate the abilities and achievements of people with Down syndrome. This year’s theme, “Together Against Loneliness,” highlights the importance of ensuring individuals with Down syndrome and their families have access to services, opportunities, and community support so they can thrive.

Down syndrome is a genetic condition that occurs when a person is born with an extra copy of chromosome 21. This can affect a child’s physical growth, learning ability, and development. But with the right support, therapy, and opportunities, children with Down syndrome can develop important skills essential to their independence, allowing them to live meaningful and fulfilling lives.

In many communities around the world — including parts of Sierra Leone — children with Down syndrome and other disabilities still face stigma and discrimination. Misconceptions about disability, often passed down from one generation to the next, can lead to exclusion from education, limited access to health services, and social isolation for both children and their families. Awareness and inclusive support systems are critical to ensuring every child has the chance to reach their full potential.

Bakisa’s story is a powerful example of what is possible when the right support is in place.

About one year ago, during an Enable the Children (ETC) outreach visit to a partner organization, Nyandengoh, the ETC team provided physiotherapy and occupational therapy services to children enrolled in the program. During that visit, the team assessed a young child named Bakisa, who has Down syndrome. At the time, Bakisa was experiencing significant developmental delays. She was unable to sit or walk independently. She had poor head control and a very weak trunk, making it difficult to maintain balance or perform basic movements appropriate for her age.

After assessing her needs, the Enable the Children team began providing physiotherapy interventions designed to improve her physical development. Working closely with her family and the Nyandengoh staff, the team introduced guided exercises and practical techniques that could be continued at home and within the program.

Through consistent therapy sessions, caregiver commitment, and ongoing encouragement, Bakisa began to make steady progress.

Because of this support, Bakisa’s transformation has been remarkable.
She can now sit and walk independently — an important milestone in her development. Her head control has improved significantly, and she has gained strength and stability in her trunk, allowing her to move with greater confidence. She has also begun developing basic self-help skills and can now complete several daily activities with minimal assistance.

Her progress has brought joy not only to her family but also to her community. Bakisa’s journey is a reminder that when children with disabilities are supported through therapy, family involvement, and inclusive programs, they can achieve milestones that once seemed out of reach.

As we celebrate what proper therapy and support can mean for children and their families on World Down Syndrome Day, Bakisa reminds us that every child deserves the opportunity to grow, learn, and belong. With stronger support systems and continued advocacy, we can build communities where children with Down syndrome are valued, supported, and empowered to thrive.